He has quadriplegic cerebral palsy and severe dystonia, epilepsy and reflux. Alfie spends most of his life in pain.
When Alfie was five years old we were given a RADAR key to access the disabled toilets in my home town which I was very pleased with – until I actually used the toilets and realized that they are not for the people with a severe disability.
If you have a severe disability or paralyzed, you need carers to lift you out of the wheelchair and place you on a flat surface to have your continence pad changed. With my 14 year old son, I was forced to lay him on a urine soaked floor inside the disabled toilet when he was younger, with the 2nd carer standing outside with the wheelchair.
Now he is 14, I cannot lift Alfie out of his chair without a hoist, so he is made to sit in a wet or soiled pad where he is at risk of moisture leisions/sores, which has a detrimental effect on Alfie’s health and well being.
Without ‘Changing Places’ toilets the person with a disability is put at risk, and families and carers are forced to risk their own health and safety by lying their daughter, son or loved one on a toilet floor. This is dangerous, unhygienic, humiliating, and undignified.
We would not change a baby on the floor of a public toilet – so why on earth is this acceptable for disabled adults?
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